Wednesday, November 7, 2007

Sensory Integration Disorder




This is perhaps the most personal thing I've ever posted because it's very hard for me to write about things we struggle with. Because blogging is so public, there are things you just don't talk talk about here. But one of things I love about the adoption blogging community is that it is so encouraging and supportive, and it is in that spirit I am sharing our experience with this baffling topic.

If you are adopting a child from Eastern Europe, I urge you to educate yourself about Sensory Integration Disorder. This is something our precious son has, as do most children who were "cribbed" for long periods of time without nurturning or stimulation of any kind. It is also common to children who were born prematurely and were incubated. I don't think either one of our older adopted children have this problem, as they did not go to the orphanage until age five.



Earlier this year, Christian's Montessori teacher sugggested we have him tested for this. We quickly ordered books she suggested such as The Out of Sync Child, and instantly realized that there was a name for some of Christian's peculiar behavior.



I mention this being so personal because after learning about this, I knew that I had not been the great parent I thought I was. What I thought was disobedience many times was not. He does not like to wear short sleeve shirts, or shorts, even when it's 100 degrees outside. He would much rather sweat.



At six years old, he is still afraid to ride a bicyle, or even sit on his tractor. Instead, he pushes his tractor all over the yard, but if I suggest he rides, he becomes frantic with fear.

He still tries to find ways to stimulate himself, just as he rocked himself in his crib five years ago. The funny position he's in while watching TV is an example of that. There are many, many other symptoms and odd behaviors associated with Sensory Integration Disorder. Please read about it now, even if you feel certain that your adopted child is OK. Christian sees an occupational therapist weekly, and we are much relieved that we finally have some tools to use in helping our sweet boy. Also be advised that this is something many teachers, doctors and therapists are not aware of. It gets misdiagnosed all the time as ADHD, Oppositional Defiant Disorder, or even autism.


Also a word to Christian parents who rightly want to raise their children "Biblically." I've read Dobson's book about raising a strong willed child, and Ted Tripp's "Shepherdering A Child's Heart." Both good books, but I must say that I failed my son badly by using the Dobson/Tripp discipline model for Christian for more than four years.



These guys are big on spanking and make a sound Biblical case for it. But spanking a child with Sensory Integration Disorder, who is screaming because he doesn't want to put on a short sleeve shirt is counter productive to say the least. He or she is not being disobedient! Please read about this and you'll understand.



When I learned that many kids with this don't like to wear short sleeves, I cried. I had spanked Christian many times when he refused to wear short sleeves because I thought he was being disobedient. I was wrong and I'm afraid I did much harm. I am a professing Christian believer, but I warn you that you will get alot of unsolicited and bad advice from well meaning Christians on how to discipline your adopted child. My advice is to throw out Dobson and Tripp, and learn about this very real affliction.

We are now moving forward, and optimistic that we can help Christian to thrive in this broken and disordered world. Now that we know about this, we are much better equipped to do that.


22 comments:

Leslie said...

Thanks for being so open and sharing this struggle, Jim and Dana. Christian is in our prayers. Praise God for showing you some options to meet his needs.

Debora Hoffmann said...

I second what Leslie said--thanks for sharing! This is something we as potential adoptive parents need to be aware of, and I really wasn't. Now I am able to pray for you all.

adoptedthree said...

Jim
Thanks for the wonderful insight on Sensory Defecit. I like your posting. I found your openess refreshing, as it is something that I too have struggled discussing with the outside blog world. It takes a lot of courage. I personally have not posted about that part yet in my DS's world. I too have a son that struggles with sensory issues. He could not even have rain touch his hair! My son has other conditions that are closely related but sometimes they can be so hard in the struggles to understand him. It can really be hard some days!!

Blessings on providing much needed information to PAPs, although I have BTDT with my son for almost eight years now.

John said...

Not knowing about a condition that 99.9% of people on the planet have never heard of does not make one a bad parent.

Not knowing that you shouldn't give beer bongs to a 6-year-old, THAT would be bad parenting.

Nataliya said...

Thank you so much for sharing - I think it's great that now you know how to deal with the sensory issues. Don't be very hard on yourself - you just wanted the best for your child! Your post is priceless for us pre-adoptive parents. Thanks again for sharing.

Stefanie and Bill said...

I think the old saying, "Kids don't come with instruction manuals" rings true here. The important thing is now you are aware and moving forward....thats what matters most!
Thanks for being open!
Stefanie

Tami said...

Thank you for being so open and honest about your family's struggle with SID. Our oldest son has a mild form of SID, thankfully with some intervention and time he is coming around.
Unfortunately we are also dealing with another 'leftover' issue from his days in the orphanage... Auditory Processing Disorder. This disorder means Q-ball can hear was we tell him, but he's not always able to translate it into a meaning. He can copy back what you have said, but when you ask him to put it in his own words he's unable to do it.
So in the many instances where it seems as if he's not following directions or is disobeying us...chances are he just didn't understand the directions in the first place. Unfortunately we weren't able to discover it until he started having a little bit of trouble with school work.
Talk about misplaced discipline and the accompanying guilt. All this time we thought he wasn't paying attention or was willfully disobeying us...instead he just couldn't understand.
Sigh.
If parenting is ONE of the most difficult jobs in the world...parenting a post-institutionalized child IS the hardest. But it is also the most rewarding!
We'll be praying for Christian and for you.

Courtney said...

Thank you so much for your post. We will be adopting shortly from Ukraine (Dec 4!) and I am gathering as much information from adoptive parents as possible as we will be first-time parents. Thank you for being willing to bare your heart and share your struggles, as well as offer resources.

Courtney

Kathy and Matt said...

Thank you for continuing to share your experiences with all of us. As we prepare to travel, it is so helpful to have experienced adoptive parents providing insights into things we should prepare for related to the health of our adopted child. We are so appreciative.
We'll pray for you and Christian as you continue to help him deal with this.

adopting2fromUkraine said...

You will probably help many people by being honest and sharing these personal things. It makes me very sad that so many children miss out on the fundamental rights every child is entitled to. The more I've read about orphaned children and the opportunities they've missed in their childhood to be 'normal', the more it makes me realize what I've truly given to my own children. I don't know where this Bible verse is located, but I heard someone quote it, (not and exact quote) The Lord can restore what the locusts have eaten, in other words, God can restore the time we've wasted if we give things to Him.

ArtworkByRuth said...

Thank you for posting this honest and helpful blog. We just returned with our 6 year old son in September from Ukraine and have searched the post-placement blogs for wisdom. We opened up our private blog after finding a lack of honest updates and hope to help others learn from us as well. You are in our prayers! God Bless!

Pickel said...

Dana,
When we adopted our son from Russia we knew right away something was wrong because he was very difficult and just not right. AJ has severe SPD and it is my opinion that about 80-90% of kids from orphanages have at least some form of SPD.

I also think that our agencies do not do enough to teach us about it. Don't beat yourself up about this...you and your son will learn how to deal with this together. It will continue to be a learning curve but you will both get to the point that you will learn to communicate your needs.

I write a lot about SPD on my three sites if you ever need anything.

http://www.discussingautism.com
http://achildchosen.com
http://adopttwoboys.blogspot.com

Marcie

lillinda said...

I just read your post on SID and I could have wrote the same thing. We adopted a boy that was severly neglected for the first 9 months of his life (here in the US, happens more than we want to think!)
I too, cried when I read The Out of Sync Child and found my son in there, I too was guilty of spanking him for throwing and spitting food . He didn't talk until he was almost 4 and we didn't understand his food was always too hot or too cold.
I thank the Lord for the stranger that put that book in my hands.
God Bless you on your journey.
Linda

Unknown said...

I was just doing a random search for christians and sensory processing disorder and ran across your page.

I realize most comments are from a few years back, so I pray you Christian is doing great.

I am a mother of a 6 year old little girl who has dealt with sensory issues since she was three - mainly auditory. At this point, we are looking to possible have her evaluated for Aspergers. It is a day to day type of thing. Sometimes she seems completely fine, others days, everything is a bother.

ANyway, I am also the leader of elementary children's ministries at our church plant here in Vegas. My husband is the worship leader. As I am doing random searches, I am finding that there is little to no books or valuable information for Christian parents of children with Sensory Issues or spectrum disorders.

We are not adoptive parents and Emma was not left in a crib or neglected by any means. I've been a stay at home mom since she was born, so she received my one on one care and attention. I had never heard of the problem of kiddos from Eastern Europe who have spent time in orphanages dealing with SPD. I know that their brains process things differently than the neurotypical child, but it makes sense that if a child is neglected, left in crib, this would affect the brain processing. Studies show us that.

ANyway, I would really love the chance to talk with ya' more via email, etc. of your experiences. I am in the process of interviewing and speaking with as many Christian parents as I can who have children who deal with SPD or spectrum disorders. I'm also looking to hear from people who know of churches /children's ministries who are doing a good job at addressing this often overlooked population of kids on the spectrum in their children's ministry.

Eventually I would like to compile it all into a book that could serve to help CHristian parents who are walking what can be a very isolating road in the Christian community.

Would love to hear back from you. Maybe you could send your email address. If not, I'll send you mine. I still need to create a separate one for what's starting out as just a lil' project but may grow into a bigger one :).

THanks for sharing your heart on your blog. You just never know whose lives you may touch even well, 4 years later. :)

Linda Brooks Simas said...

Please forgive yourself becsuse you were doing your best. I am ao christian too and unfortunately raised my grown children on dobson and tough love and i one day ealizoed my grown children and now my grandson havep sensory issues i apologized to my grown children for my mistakes and i forgive myself because i know i didnt know better... now we are all raising this new generation of little ones different with a few new rules, no spanking ever, if it is not illegal, immoral, or permanent scarring ie tatoos let the little ones decide, they have to go to bed but cant make them sleep. They wont catch ill from being wet or cold that is caused by viruses, first time wet and cold they will remember to wear a raincoat, they will eat healthy if we limit junk, give little ones lots of freedom in big non negotiaoble boundaries ie green hair and piercings ok, tatoos drugs not ok. Being gay ok but too young for sex, ged and trade school ok but dropping out not ok, be as flexible as you can within big firm boundaries. And spanking never ok. Your son will forgive you snd parents set a good example when they admit erong and apologize

Linda Brooks Simas said...

Please forgive tablet typos and your son is beautiful

Linda Brooks Simas said...

Also loved and wanted children have sensory issues, it isnt always from neglect.

Shawn and Mindy said...

Hello, My wife and I adopted 2 boys and my youngest one was just diagnosed with SPD. I to am a huge advocate for Dr. Dobson and his discipline method. I understand how you feel/felt about spanking in the thought that it was disobedience and not understanding that something else was going on. It is tough being a christian these days and maintaining discipline in the home. I am a firm believer that you can modify your discipline based upon the child. My wife and I look forward to learning about this SPD and how to teach our son to cope with it, he is 4 now.

Shawn and Mindy said...

Hello, My wife and I adopted 2 boys and my youngest one was just diagnosed with SPD. I to am a huge advocate for Dr. Dobson and his discipline method. I understand how you feel/felt about spanking in the thought that it was disobedience and not understanding that something else was going on. It is tough being a christian these days and maintaining discipline in the home. I am a firm believer that you can modify your discipline based upon the child. My wife and I look forward to learning about this SPD and how to teach our son to cope with it, he is 4 now.

Anonymous said...

Hi, this blog was created so long ago, I don't even know if you still check it. I am adopting a US child who was cribbed for her first five months, no holding, plus she had major abdominal surgeries five times. She is two now, very strong willed and SPD. We have tried spanking and it just doesn't work...if done safely. I don't know what to do for discipline. Any advice?

Anonymous said...

Hi, this blog was created so long ago, I don't even know if you still check it. I am adopting a US child who was cribbed for her first five months, no holding, plus she had major abdominal surgeries five times. She is two now, very strong willed and SPD. We have tried spanking and it just doesn't work...if done safely. I don't know what to do for discipline. Any advice?

Anonymous said...

Hi, this blog was created so long ago, I don't even know if you still check it. I am adopting a US child who was cribbed for her first five months, no holding, plus she had major abdominal surgeries five times. She is two now, very strong willed and SPD. We have tried spanking and it just doesn't work...if done safely. I don't know what to do for discipline. Any advice?